09.24.2020

Four years ago, when my 6 year old daughter Mila was diagnosed with Batten disease, I decided to open the door to my home, to my life, to my emotions. I wasn't a scientist or a fundraiser, but I knew that I needed to draw attention to Mila's story. All I had to offer was my vulnerability. So I began to write a blog and speak whenever I was given the chance. What started as a mission to raise funds and find researchers in a race to save Mila’s life, turned into a way to help me survive, and eventually start to heal. I have been humbled to hear from so many that the way I've shared my story has helped them face their own lives.

And so I decided to launch this photo journal in hopes that it continues to help me as well as others navigate the ups and downs of life. This is my life. This is Today.